Thursday, July 29, 2010

We Need to Increase Efforts to Treat Rare Pediatric Diseases

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Sen. Brown recently attended a hearing, called at his request, of the Health, Education, Labor, and Pensions (HELP) Committee. It examined rare and neglected pediatric diseases.

At the hearing, "Treating Rare and Neglected Pediatric Diseases: Promoting the Development of New Treatments and Cures

," Sen. Brown noted that while children make up more than 20 percent of the American population, "pediatric research by the National Institutes of Health (NIH) accounts for a mere 5 to 10 percent of the total NIH budget."

Furthermore, Sen. Brown continued, "If we are falling short in our efforts to cure and treat pediatric diseases and conditions - we are falling woefully and inadequately short in our efforts to cure and treat rare and neglected pediatric diseases and conditions. Seven thousand known rare or orphan diseases afflict nearly 30 million Americans - approximately 50 percent of whom are children."

To read Sen. Brown’s full remarks, please click here

. To give Sen. Brown your thoughts, please click here
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